Time has seen management for Cystic Fibrosis (CF) advance drastically, most recently in the development of the disease-modifying triple combination therapy ivacaftor/tezacaftor/elexacaftor. There is currently limited evidence regarding both the global epidemiology of CF and access to this transforma...tive therapy - and therefore where needs are not being met. Therefore, this study aims to define gaps in access to CF treatment. The results show that a significant CF patient burden exists in countries where disease-modifying drugs are unavailable, and final figures are likely underestimates. This analysis shows the potential to improve rates of diagnosis and treatment for CF, so a higher percentage of patients receive the most effective triple combination treatment.
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Special Issue: Special Education in Sub-Saharan Africa | This special issue of our Communication*Support*World*Network*Newsletter attempts to share practical ideas and information about special education for children with disabilities in sub-Saharan Africa. Our intent is to begin a dialogue among th...ose interested in this important topic, and to promote an increased exchange of ideas, approaches, information, resources, and promising practices.
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Singing to the Lions is a free training package (facilitator’s guide, supplement and video) by CRS, that is designed to help children and youth lessen the impact of violence and abuse in their lives. The main component is a three-day workshop where participants learn skills that can help them tran...sform their lives and no longer feel dominated by fear. Although the workshop is aimed at young people and includes games, art and songs, it can also be used to help adults take action on aspects of their lives that cause fear and, in so doing, become better parents and caregivers.
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Advocacy achievements of the bridging the gaps global partners
Accessed: 17.11.2019
Mem Inst Oswaldo Cruz, Rio de Janeiro, Vol. 117: e220083chgsa, 2022
Two adjectives raise an issue for communicators working on Chagas disease (CD): “invisible and silent”. Two adjectives that can be ascribed to other neglected tropical diseases (NTD), but which are part of the essence of CD. Br...inging CD out of its situation of neglect and oblivion is a mission entrusted mainly to the world of communication as well as of science, politics and financial resources. However, communication has not always been considered among the priorities in the approach to the disease, except in valuable exceptions, some of which we have seen in the preceding article.
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As this report shows,
reports of child abuse and of children
witnessing violence between their
parents and caregivers have increased.
Ending violence against children is
increasingly within our reach. D
Burkina Faso remains one of the poorest countries in the world, with 44.5% of the population living below the poverty line. To promote the rights of persons with disabilities, the country has adopted almost all of the relevant initiatives and international legal texts on the rights of persons with d...isabilities including the Convention on the Rights of Persons with Disabilities (CRPD) that was ratified in 2009. The country has also adopted a National Strategy for the Protection and Promotion of Persons with Disabilities (SN-3PH, 2012), based on, amongst other approaches, Community Based Rehabilitation (CBR), promoted by the WHO and LIGHT FOR THE WORLD. Following on from the 2011-2015 country strategy that enabled LIGHT FOR THE WORLD to contribute strongly to the national dialogue on disability, the present strategy 2016-2020 aims to strengthen our achievements in order to work towards an inclusive society in which persons with disabilities fully enjoy their rights.
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The nature of humanitarian work has also drastically changed over the last
decade. Humanitarian workers have paid dearly in the face of violence and
terrorism. Burn out and after-effects of traumatic experiences constitute a
major risk for humanitarian workers. After ten years of experience with ...delegate
stress, the Psychological Support Programme (PSP) team emphasizes
the importance of efficient stress management.
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MANDATEHandicap International in Ethiopia aims at promotinginclusive access to humanitarian aid and development sectors for the most vulnerable groups, including people with disabilities. This includes providing access to services by supporting equal opportunities for people w...ith disabilities and vulnerable groups to access todevelopment of their country; mitigate impacts of crisis and support resilience for the most affected populations
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Handbook of Foodborne Pathogenic Microorganisms and Natural Toxins
ECDC MISSION REPORT 19–21 September 2016 ; 14–15 November 2016
IDS Practice Paper in Brief 16
BMJ Global Health2020;5:e001980. doi:10.1136/bmjgh-2019-00198