Keep up to date with our research, news and events
- Read the latest newsletter
April Newsletter
Dear friends,
This month, Tom’s comic novel “The Ha-Ha” has been released. It is described as “a feel-good comedy of friends reunited”. Importantly, it features a lead character who is neither a hero nor a tragic figure, but just an ordinary man with disabilities. The novel has been publicised with a feature in The Guardian, as well a “This is My Time Capsule” podcast. Congratulations Tom!
In other achievements, our PhD Student, Benafsha Yaqoobi has been awarded the 2024 International Women of Courage Award from the US Department of State, in recognition of her global leadership on disability rights. An amazing accomplishment! Congratulations also to Veronika Reichenberger, who submitted her PhD this month. In her thesis, she used video approaches to understand access to healthcare for people with disabilities in Brazil, including reflecting on Healthcare Provider Attitude, Financial barriers and transportation, Rehabilitation, and making a Participatory Video filmed and produced by people with disabilities.
At ICED we are committed to help move research into practice. Last week, I was delighted to take part in the inauguration of the Steering Committee for the Disability Inclusive Health Initiative in Nigeria, led by the Minister of Health Dr Pate. The Committee is highlighting the barriers faced by people with disabilities when accessing healthcare in Nigeria, and seeking to implement solutions. Also last month, LSHTM has started a new study, led by Katie Greenland and funded by the Down Syndrome Research Foundation. The study will investigate unmet menstrual-health requirements and identify opportunities for interventions that will improve the menstrual health of adolescents with Down Syndrome in the UK.
Read on for more ICED news!
With best wishes,
Hannah and Tom
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. Find out more information from our website.
Last month, we started data collection for the baseline of the impact evaluation of the Baby Ubuntu in Rwanda – a programme of early assessment, care and support for children at risk of developmental disabilities. The research is conducted in collaboration with Lifetime and Partners in Health. A team of 17 data collectors are working to sample 1,400 children across three districts, Burera, Kamonyi, Gakenke.
We held a webinar to disseminate the findings from the process evaluation of the Hygiene and Behaviour Change Consortium – established to assess the inclusion of people with disabilities and older people in the COVID-19 response. Catch the short film summarising the findings here.
Finally, Mark Carew leads the process evaluation work across the PENDA portfolio. He has now been appointed as Co-Theme Lead for Process Evaluation for the LSHTM Centre for Evaluation. It is an exciting opportunity to mainstream disability further within LSHTM research!
Publications
Papers this month from ICED!
- Kipchumba E, Davey C, Marks S, Mugeere A, Chen S, Banks LM, Islam KE, Shakespeare T, Kuper H, Sulaiman M. Evaluation of a disability-inclusive ultra- poor graduation programme in Uganda: study protocol for a cluster-randomised controlled trial with process evaluation. Trials. 2024 Mar 21;25(1):206.
- Rodríguez Gatta D, Rotenberg S, Allel K, Reichenberger V, Banks LM, Kuper H. Access to general health care among people with disabilities in Latin America and the Caribbean: a systematic review of quantitative research. Lancet Reg Health Am. 2024 Mar 8;32:100701.
- Butura AM, Ryan GK, Shakespeare T, Ogunmola O, Omobowale O, Greenley R, Eaton J. Community-based rehabilitation for people with psychosocial disabilities in low- and middle-income countries: a systematic review of the grey literature. Int J Ment Health Syst. 2024 Mar 14;18(1):13.
- Reichenberger V, Corona AP, Ramos VD, Shakespeare T, Hameed S, Penn-Kekana L, Kuper H. Access to primary healthcare services for adults with disabilities in Latin America and the Caribbean: a review and meta-synthesis of qualitative studies. Disabil Rehabil. 2024 Mar 3:1-10.
- Scherer N, Banda-Chalwe M, Chansa-Kabali T, Nseibo K, Seketi QE, McKenzie J, Smythe T. Disability research in Zambia: A Scoping Review. Scand J Dis Research; 2024; 26 (1): 44-66. Scandinavian Journal of Disability Research.
Upcoming Seminars and Events by LSHTM
ICED webinars:
ICED co-hosting with the MARCH centre: Creating opportunities for inclusive and integrated play for children with developmental disabilities
Date: Wednesday 10 April 2024
Time: 13:00 - 14:00
Platform: Zoom
About the webinar: In this webinar, the speakers will be exploring the importance of play for children with disabilities and exploring how to create opportunities for integrated and inclusive play.
Poverty and Disability: What can the evidence tell us on how these conditions are related?
Date: Wednesday 24th April
Time: 13:00 - 14:00
Room: G08 Keppel Street
About the webinar: During this seminar, the speaker will discuss the evidence of disability and multidimensional poverty around the globe. The results use data from more than 40 countries around the globe to analyse if households with a member with disability present higher levels of multidimensional poverty than households without members with disabilities.
Speaker: Mónica Pinilla-Roncancio, Universidad de los Andes in Bogota.
Stellenbosch webinar series
We would also like to highlight the new Stellenbosch webinar series (November 2023 - April 2024), which includes a range of ICED members. The zoom link is here (Meeting ID: 967 1581 4855 and Password: 669746), for all the webinars.
All webinars are from 13:00 – 13:45 South Africa Standard Time (usually 11:00-11:45 UK time) on the 3rd Thursday of the month.
Click here to view the previous webinar.
18th April 2024: Dr Michelle Botha will be speaking about crafting conference worthy academic abstracts. Zoom link
Other things of interest
- ICED’s Dorothy Boggs presented at Aging, Functioning, and Rehabilitation: A Workshop on the Challenges and Opportunities of Advocating for Functioning as the Third Indicator of Health
- Tom Shakespeare advised the online exhibition “Experience a world Unseen” photography as it maybe experienced by people with sight loss.
- Conference alert: April 24-26, University of the Free State “Taking a transformative approach to inclusion and equality: A disability rights perspective.”
- Congratulations to the Zero Project Awardees 2024!
Work Experience Programme at ICED
We are currently not taking on new candidates, however you are welcome to complete an online application to register interest in the programme. Please complete the application form.
Have you seen this?
“Assume that I Can” video – launched for Global World Down Syndrome Day 2024 (1.30 minutes).
- Read previous newsletters from 2021
2024
2023
2022
- January 2022
- February 2022 (No newsletter for this month)
- March 2022
- April 2022
- May and June 2022 (No newsletter for these months)
- July 2022
- August 2022 (No newsletter for this month)
- September 2022
- October 2022
- November 2022
- December 2022
2021
- January 2021 (No newsletter for this month)
- February 2021
- March 2021
- April 2021
- May 2021
- June 2021
- July 2021
- August 2021 (No newsletter for this month)
- September 2021
- October 2021
- November 2021 (No newsletter for this month)
- December 2021
- Archive newsletters
2020
- January 2020
- February 2020
- March 2020
- April 2020
- May 2020
- June 2020
- July 2020
- August 2020
- September/October 2020
- November 2020
- December 2020
2019
- January 2019
- February 2019
- March 2019
- April 2019
- May 2019
- June 2019
- July 2019
- August 2019
- September 2019
- October 2019
- November 2019
- December 2019
2018
- January 2018
- February 2018
- March 2018
- April 2018
- May 2018
- June 2018
- July 2018 (No newsletter for this month)
- August 2018
- September 2018
- October 2018
- November 2018 (No newsletter for this month)
- December 2018
2017
- January 2017
- February 2017
- March 2017
- April 2017
- May 2017
- June 2017
- July 2017
- August 2017
- September 2017
- October 2017
- November 2017
- December 2017
2016
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
2015
- December 2015
- November 2015
- October 2015
- September 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
2014
2013
Work experience with ICED
Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.
We are currently not taking on new candidates however, you are welcome to complete the application below for potential future openings.
The programme is for candidates to gain work experience in research within an academic setting. We will strongly consider the following applicants:
- People with disabilities
- An interest in pursuing a career in research
- Preference given to people from LMICs
- People holding a Bachelor’s degree (minimum), ideally a Master’s degree.
Please complete the application form for consideration.
Disability-Inclusive Education and Employment
This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.
The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation.
Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.
COVID-19 Support and Guidance
The situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available.
- Information on how parent groups have been run post ‘lock-down’ in Rwanda
- Guidelines on what to consider to run groups safely in the context of COVID-19
- A range of free digital COVID-19 educational resources for children: download Axel Scheffler’s book, download a copy of Lydia Monk’s book
- Share your story and contribute to voices of people with disabilities during the COVID-19 outbreak: voices
- LSHTM’s free online course for anyone who is interested to learn about what we know about COVID-19, and how we should respond to the outbreak
- A course that introduces COVID-19, created for teenagers and young adults
- Presentation from the International Centre for Evidence in Disability: making the response disability-inclusive
- Paper on what we can learn from a disability inclusive response
- Working with parent groups – a training resource for facilitators and caregivers
-
These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.
Download the manual (in various languages)
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.”
Parent, Sirajganj, Bangladesh
Animated videos on child development and developmental disability
Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community.
Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.
The videos are available in English, Portuguese (Brazil) and Spanish.
View the English videos below:
View the English videos with subtitles here:
- Child development video with English subtitles
- Developmental disability video with English subtitles
View the Portuguese (Brazil) videos with subtitles here:
- Child development video with Portuguese (Brazil) subtitles
- Developmental disability video with Portuguese (Brazil) subtitles
View the Spanish videos with subtitles here:
Supporting Families Affected by Zika virus
Children with developmental disabilities and their families
Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.
Community Ear and Hearing Health Journal
This annual publication promotes good ear and hearing health in low and middle-income countries.
It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.
- Read previous issues
-
- Issue No. 21 (2020) Ear and hearing care in the midst of a pandemic
- Issue No. 20 (2019) Noise-induced hearing loss
- Issue No. 19 (2018) Hearing aid systems in low-resource settings
- Issue No. 18 (2017) Focus: Ear and Hearing Health in Schools
- Issue No. 17 (2016) Common ear conditions underdiagnosed at primary level
- Version Française No. 3 (2021) Soins de l’oreille et de l’audition en temps de pandémie
- Version en Español No. 2 (2021) Cuidado del oído y la audición en media de una pandemia
- Version française No. 2 (2016) Sensibiliser la communauté à la santé de l’oreille et de l’audition
- Version en Español No. 1 (2016) Abordando los problemas de oído
- Version française No. 1 (2015) Lutter contre les affections de l’oreill et de l’audition au niveau primaire
- Issue No. 16 (2015) Testing small children’s hearing with little or no equipment
- Issue No. 15 (2014) Early detection of hearing loss in newborn and preschool children
- Issue No. 14 (2014) Living with hearing impairment
- Issue No. 13 (2013) Increasing community awareness of ear and hearing health
- Issue No. 12 (2012) Addressing ear and hearing problems at primary level
- Issue No. 11 (2011) Projects in the Philippines
- Issue No.10 (2010) Less noisy cities Issue No. 9 (2009) Noise: an ubiquitous pollutant
- Issue No.8 (2008) Tinnitus: a common and manageable complaint
- Issue No.7 (2008) Screening for hearing impairment
- Issue No.6 (2007) Chronic suppurative otitis media: a disease still waiting for solutions
- Issue No.5 (2007) Rehabilitation of the deaf and hard of hearing
- Issue No.4 (2006) Deafness caused by ototoxicity in developing countries
- Issue No.3 (2006) Congenital infections and hearing impairment
- Issue No.2 (2005) Current practice for ear syringing
- Issue No.1 (2004) Congenital deafness in developing countries
Press articles
Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.
- Read press articles on our work
-
- Disability in the Global South Journal focusing on Disability and the SDGs, edited by Hannah Kuper and Shaun Grech. July 2017
- National Survey of Disability in Guatemala 2016 – Case Study, International Institute for Sustainable Development, June 2017
- Hannah Kuper discusses the exclusion of children with disabilities from education around the world – Al Jazeera News Hour (live), 18 August 2015
- Many disabled children in poorer countries left out of primary education – The Guardian, 18 August, 2015
SciDev.net columns
- February 2016: ‘Zika babies’ need support now
- January 2016: Kids at risk from El Niño
- December 2015: Monitor birth defects to save lives
- November 2015: Rethink healthcare for the ageing world
- October 2015: Defend girls’ sexual health rights
- September 2015: Reshape mental healthcare in crises
- August 2015: Give SDG monitoring some bite
- July 2015: Community care cuts NTD burden
- June 2015: Better data on disaster victims
- May 2015: A better way to find disabled kids
- April 2015: The next hurdle for Ebola survivors
- March 2015: Universal Health Coverage: Bearing the Brunt of Violence
- February 2015: Reaching Patients with Smartphones
- January 2015: Universal Health Care can happen
- December 2014: HIV and Disability November 2014: Ageing and Disability
Global Health and Disability
All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.
- Download full course
- Download content from each week
-
- Week 1: Disability and its importance to the global development agenda
ZIP (522MB)|ZIP (no videos) (9MB) - Week 2: Health, wellbeing and disability
ZIP (807MB)|ZIP (no videos) (19MB) - Week 3: Access to health care and rehabilitation services
ZIP (904MB)|ZIP (no videos) (154MB)
- Week 1: Disability and its importance to the global development agenda
- Download individual resources
-
Video: Welcome to the course
Week 1: Disability and its importance to the global development agenda
Video: Welcome to week 1
Video & teaching slides: Why does disability matter globally?
- Video (MP4 74.9MB)
- Step text and transcript (PDF 80KB)
- Teaching slides (PDF 954KB)
- References (PDF 88KB)
Video: Why does disability matter – Personal perspectives
Article: Why does disability matter – individual case studies
Article: Why does disability matter to International Development? Part 1
Article: Nothing about us without us
- Article (PDF 122KB)
- References (PDF 188KB)
- Disability and the SDGs – How relevant is each SDG to disability? (PDF 632KB)
Video: What does disability mean – personal perspectives
Video: Attitudes to disability
Video: What does disability mean – a framework
Article: Measuring disability: Why would you want to and how do you do it?
Video: What is the relationship between impairments and disability?
Video: what are the common impairments related to disability?
- Video (MP4 42MB)
- Step text and transcript (PDF 81KB)
- Teaching slides (PDF 2MB)
- References (PDF 266KB)
Article: Why does impairment matter?
Video: Summary of week 1
Video: Welcome to week 2